We met on Thursday March 17 with the staff at Children’s about expectations and guidelines for the children’s heart surgery website. The procedure we will be investigating and building an information site for is called an ASD procedure, which stands for atrial septal defect. We were told to make sure that we get all information on the procedure from .gov, .edu, and .org sites. Children’s Hospital is planning on talking to their account managers to decide if they could purchase a 3D model for us to use. It sounds like it will happen. Goretex Helix and Ampletzr are two companies that have the device that fills the hole in the heart; we can check around on those websites.
The following are the type of questions to keep in mind as we are developing the project for families (questions that families may have): What is the condition? (Explain it). What does it mean for our child’s health and life? What happens if we don’t do anything about it? What happens if we do? How is it going to limit our child’s life? How will it limit our families ability to do family things?
We also decided that we don’t want to dumb down the parents informational too much, perhaps show illustrations in both flat drawings and 3D modeling. We want to have a warm, caring tone, but also very straight and realistic.
Matt Girard gave a PDF presentation on ideas we have gathered so far. It was well-received, and the attending doctor and staff thought we were moving in the right direction. We are still unsure of what they want to do. Matt has attempted to communicate through email during spring break and got no response. As of now we are gathering the proper information for the surgery and the information for the parents. We wait patiently to hear back.